Lobbying registrant · LD-2 disclosures
Everylife Foundation for Rare Diseases
District of Columbia
21 filings · 1 client · 3 lobbyists registered · 2021–2026 · latest filed Jul 17, 2026
Fees billed to clients
$0
never billed a fee — files for itself
Its own lobbying spend
$610K
filed on its own behalf
Clients represented
1
3 lobbyists registered
Reported spend over time
Every filing period on record, as reported. One column per filed period — a period with no column is a period with no filing, not a zero.
Basis · Amendments and terminations supersede the original report for the same registrant, client and period, so a revised quarter is counted once at its latest filed value. Registration-only filings carry no activity money and are excluded from these totals.
Who they lobby for
This registrant files only on its own behalf — it has never reported a fee for representing anyone else.
Reported as lobbying expenses
Money reported as spent on lobbying rather than as a fee charged to a client.
What they lobby on
Issue areas declared on the filings, ranked by how many filings name each one.
Health Issues
HCR · 1 client
21 filings
$610K on those filings
Note · A filing names one to several issue areas and reports a single dollar figure for the period, so the same money appears beside every issue that filing declares. The dollar column is therefore money on filings that named this issue — it is not a split of the total, and these figures sum above it. Filing counts do not double-count.
Who does the lobbying
Every lobbyist named on this registrant's filings.
- Jamie Sullivan22 filings1 client · through 2026
- Dylan Simon22 filings1 client · through 2026
- Kylie Barber3 filings1 client · through 2021
The filings
The 20 most recent of 21 filings. Every figure above is built from these records.
This record groups every filed spelling of the registrant's name into one entity, so punctuation variants of the same firm read as one. The grouping is the registrant's normalized name — firms that file under genuinely different names appear separately. Handle: everylife-foundation-for-rare-diseases.