LD-2 disclosure · 4th Quarter - Amendment
OSTEOGENESIS IMPERFECTA FOUNDATION
Coverage · No income or expenses were reported on this filing.
Client
- Description
- Non-profit and advocacy.
- Location
- Maryland · United States of America
Registrant
- Description
- Government Affairs
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
1 issueHealth Issues
Implemented an "Advocacy Day" for the Rare Bone Disease Advocacy Alliance, consisting of the OI Foundation and other rare bone disease patient organizations. Advocates from around the country urged lawmakers in the House and the Senate to support increased funding for rare bone disease research at the National Institutes of Health. Contacted staff of Rep. Ruppersberger to urge the introduction of a resolution recognizing Osteogenesis Imperfecta Foundation Awareness Week.
Lobbyistsmr KYLE T MULROY · mr SPENCER ORAN PERLMAN
Covered position (mr KYLE T MULROY): Legislative Assistant, U.S. Senate
Covered position (mr SPENCER ORAN PERLMAN): Legislative Director, U.S. House
TargetedSENATE · HOUSE OF REPRESENTATIVES