Client
- Name
- FAMILY VOICES
- Description
- National nonprofit firm of and for families of children with special health care needs.
- Location
- District of Columbia · United States of America
Registrant
- Firm
- JANIS GUERNEY
- Description
- Government relations consulting on child health issues.
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
3 issuesCivil Rights/Civil Liberties
- Letter urging the Administration to take further action to ensure that states make vaccination protocols, appointment systems, and related materials accessible to all members of the public, including people with disabilities and those with limited English proficiency. -Statement urging policymakers to reject policies employing the metric of "Quality Adjusted Life Years," which discriminates against people with disabilities and chronic conditions, and older adults.
LobbyistsJANIS GUERNEY jd
TargetedSENATE · HOUSE OF REPRESENTATIVES · President of the U.S. · Health & Human Services, Dept of (HHS) · Centers For Medicare and Medicaid Services (CMS)
Health Issues
-Letter introducing the HAB Coalition and suggesting changes to certain regulations regarding the habilitation benefit in the ACA. -Letter urging the Administration to take further action to ensure that states make vaccination protocols, appointment systems, and related materials accessible to all members of the public, including people with disabilities and those with limited English proficiency. -Letter supporting the Strengthening the Vaccines for Children Program Act of 2021 -Statement of policy principles about how to address challenges in child and adolescent mental health -Statement urging policymakers to reject use of the metric "quality-adjusted life years," which results in discrimination against people with disabilities, chronic conditions, and advanced age. -Letters to Congress and the president about ACA, Medicaid and other health priorities for next COVID legislative package -Letter supporting the bill to permanently reauthorize CHIP, the Childrens Health Insurance Program Permanency (CHIPP) Act, introduced by Rep. Nanette Barragan (D-CA) (H.R. 2347)
JANIS GUERNEY jd
