Client
- Name
- CURE SMA
- Location
- Illinois · United States of America
Registrant
- Firm
- CURE SMA
- Description
- Non-profit
- Location
- Schaumburg, Illinois, United States of America
Lobbying activities
8 issuesBudget/Appropriations
Newborn screening funding; disability program funding; rare disease funding
LobbyistsMAYNARD FRIESZ
TargetedSENATE · HOUSE OF REPRESENTATIVES · White House Office · Education, Dept of · Health & Human Services, Dept of (HHS) · Housing & Urban Development, Dept of (HUD) · Labor, Dept of (DOL) · Transportation, Dept of (DOT) · Centers For Disease Control & Prevention (CDC) · Food & Drug Administration (FDA) · Centers For Medicare and Medicaid Services (CMS) · Natl Institutes of Health (NIH)
Education
Disability accommodations, Individuals with Disabilities Education Act, Keep Our PACT Act (S. 72/ H.R. 764)
LobbyistsMAYNARD FRIESZ
TargetedSENATE · HOUSE OF REPRESENTATIVES · White House Office · Education, Dept of · Health & Human Services, Dept of (HHS) · Housing & Urban Development, Dept of (HUD) · Labor, Dept of (DOL) · Transportation, Dept of (DOT) · Centers For Disease Control & Prevention (CDC) · Food & Drug Administration (FDA) · Centers For Medicare and Medicaid Services (CMS) · Natl Institutes of Health (NIH)
Health Issues
Medicaid home and community based services, orphan & rare disease issues, coverage restrictions, Better Care Better Jobs Act (H.R. 4131/S. 2210), 21st Century Cures Act, Safe Step Act (H.R. 2163/ S. 464)