LD-2 disclosure · 1st Quarter - Report
EVERYLIFE FOUNDATION FOR RARE DISEASES
Client
- Description
- Advocacy organization focused on issues of importance to the rare disease community
- Location
- District of Columbia · United States of America
Registrant
- Description
- Law firm
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
3 issuesHealth Issues
2025 end-of-year healthcare package including reauthorization of the Pediatric Priority Review Voucher; legislation pertaining to FDA approval pathways; Implementation of FDA Rare Disease Innovation Hub.
LobbyistsNISHA QUASBA · mr NICHOLAS PETER MANETTO
Covered position (mr NICHOLAS PETER MANETTO): Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
TargetedSENATE · HOUSE OF REPRESENTATIVES
Budget/Appropriations
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities.
LobbyistsNISHA QUASBA · mr NICHOLAS PETER MANETTO
Covered position (mr NICHOLAS PETER MANETTO): Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
TargetedSENATE · HOUSE OF REPRESENTATIVES
Medicare/Medicaid
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation.
LobbyistsNISHA QUASBA · mr NICHOLAS PETER MANETTO