MUSCULAR DYSTROPHY ASSOCIATION, INC.

Health Issues

Advocated for the protection of the Medicaid program to the White House and Congress Provided viewpoints on the unaffordability of healthcare to the Ways and Means Committee Supported CMSs efforts to cover seat elevation systems Provided comments to CMS on their proposed rule on prior authorization Supported enhanced funding for NIAMS and NCATS Provided comments to CMS on Medicare Advantage Rule Supported the nomination of Duchenne muscular dystrophy in front of HRSAs ACHDNC Provided comments to CMS on low income subsidies for those in Medicare Supported the Protecting Healthcare for All Patients Act Provided comments to HHS on Benefit and Payment Parameters Worked on the introduction of the ALS Better Care Act Supported the introduction of legislation that increases access to genetic testing and genetic counselors Supported the Right Drug, Right Dose Act Supported robust appropriations for the newborn screening program.

TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS) · Labor, Dept of (DOL) · Centers For Disease Control & Prevention (CDC) · Food & Drug Administration (FDA) · Centers For Medicare and Medicaid Services (CMS) · Health Resources & Services Administration (HRSA) · Natl Institutes of Health (NIH)

Aviation/Airlines/Airports

Supported accessible air travel reforms to be included in the FAA Reauthorization Supported the MOBILE Act, legislation to make air travel more accessible Supported the Air Carrier Access Amendments Act, legislation to make air travel more accessible Supported the EVAC Act, legislation to ensure evacuations of airplanes considers those with disabilities