CURE SMA

Health Issues

Medicaid home and community based services (HCBS); orphan & rare disease issues, including Orphan Drug Tax Credit; coverage restrictions; Better Care Better Jobs Act (H.R. 4131/S. 2210); 21st Century Cures Act (P.L. 114-255); Safe Step Act (H.R. 2163/ S. 464); Cures 2.0 (H.R. 6000); Build Back Better (H.R. 5376); BENEFIT Act (H.R. 4472; S. 373)

TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS) · Centers For Disease Control & Prevention (CDC) · Food & Drug Administration (FDA) · Centers For Medicare and Medicaid Services (CMS)

Budget/Appropriations

Newborn screening funding; disability program funding; rare disease funding

TargetedSENATE · HOUSE OF REPRESENTATIVES · Education, Dept of · Health & Human Services, Dept of (HHS) · Housing & Urban Development, Dept of (HUD) · Labor, Dept of (DOL) · Transportation, Dept of (DOT) · Centers For Disease Control & Prevention (CDC) · Natl Institutes of Health (NIH)

Education

Disability accommodations; Individuals with Disabilities Education Act; Keep Our PACT Act (H.R. 764/ S. 72); Funding Early Childhood is the Right IDEA Act (H.R. 6532/ S. 3544)