LD-2 disclosure · 1st Quarter - Report
SICKLE CELL DISEASE ASSOCIATION OF AMERICA
Client
- Description
- national organization dedicated to supporting people living with sickle cell disease
- Location
- Maryland · United States of America
Registrant
- Description
- Lobbying firm
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
4 issuesHealth Issues
Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 (H.R. 1796/S. 735)
LobbyistsELLEN RIKER · LESLIE BRADY
Covered position (LESLIE BRADY): Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins
TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS)
Medicare/Medicaid
Engagement with the Center for Medicare and Medicaid Innovation on the Cell & Gene Therapy Access Model Sickle Cell Disease Comprehensive Care Act (S. 721/H.R. 5178) Medicaid eligibility and coverage for needed services for people living with sickle cell disease Implementation of H.R. 1, One Big Beautiful Bill Act Issues relating to medical listings of impairment for sickle cell disease for SSDI and SSI
LobbyistsELLEN RIKER · LESLIE BRADY
Covered position (LESLIE BRADY): Health Policy Advisor/Legislative Assistant, Rep. Brian Higgins
TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS) · Social Security Administration (SSA) · Centers For Medicare and Medicaid Services (CMS)
Budget/Appropriations