LD-2 disclosure · 4th Quarter - Report
CLAIRE ALTMAN HEINE FOUNDATION
Coverage · No income or expenses were reported on this filing.
Client
- Location
- * Undetermined
Registrant
- Description
- Government Affairs
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
2 issuesHealth Issues
Engaged the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) and the Secreatary's Advisory Committee on Genetics, Health, and Society (SACGHS) to establish a Carrier Screening Task Force
Lobbyistsmr SPENCER ORAN PERLMAN
TargetedSENATE · Health & Human Services, Dept of (HHS) · Natl Institutes of Health (NIH)
Budget/Appropriations
Secured language in the Senate Appropriations Committee Report (S.Rept. 111-243) accompanying the FY 2011 Labor, Health & Human Services, and Education Appropriations bill (S. 3686) urging the NIH to continue working with stakeholders to establish guidelines for population-based carrier screening for Spinal Muscular Atrophy (SMA).
Lobbyistsmr SPENCER ORAN PERLMAN
TargetedSENATE · Health & Human Services, Dept of (HHS) · Natl Institutes of Health (NIH)