LD-2 disclosure · 2nd Quarter - Report
EVERYLIFE FOUNDATION FOR RARE DISEASES
Client
- Description
- Advocacy organization focused on issues of importance to the rare disease community
- Location
- District of Columbia · United States of America
Registrant
- Description
- Law firm
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
3 issuesHealth Issues
Implementation of FDA Rare Disease Innovation Hub; reauthorization of Pediatric Priority Review Voucher; reauthorization of Newborn Screening Saves Lives Act.
LobbyistsNISHA QUASBA · mr NICHOLAS PETER MANETTO
Covered position (mr NICHOLAS PETER MANETTO): Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
TargetedSENATE · HOUSE OF REPRESENTATIVES
Budget/Appropriations
FY 26 appropriations programmatic and report provisions pertaining to rare disease policy priorities; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.
LobbyistsNISHA QUASBA · mr NICHOLAS PETER MANETTO
Covered position (mr NICHOLAS PETER MANETTO): Press Secretary and Legislative Assistant, Rep. Christopher H. Smith (R-NJ)
TargetedSENATE · HOUSE OF REPRESENTATIVES
Medicare/Medicaid
Accelerating Kids Access to Care Act (H.R. 1509/S. 752) and related out-of-state Medicaid issues; Medicaid funding and budget reconciliation; H.R. 1, budget reconciliation/One Big, Beautiful Bill Act.