LD-2 disclosure · 3rd Quarter - Report
CLAIRE ALTMAN HEINE FOUNDATION
Income$10Kfee reported
Client
- Location
- * Undetermined
Registrant
- Description
- Government Affairs
- Location
- Washington, District of Columbia, United States of America
Lobbying activities
2 issuesHealth Issues
Worked to implement federal recommendations and guidelines for pan-ethnic screening of carriers of spinal muscular atrophy.
Lobbyistsmr SPENCER ORAN PERLMAN
TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS) · Natl Institutes of Health (NIH)
Budget/Appropriations
Seek report langauge in the FY 09 Labor-HHS-Education Appropriations bill urging NHGRI to develop recommendations and guidelines for pan-ethnic screening of carriers of spinal muscular atrophy
Lobbyistsmr SPENCER ORAN PERLMAN
TargetedSENATE · HOUSE OF REPRESENTATIVES · Health & Human Services, Dept of (HHS) · Natl Institutes of Health (NIH)