Lobbying client · LD-2 disclosures
National Organization of Rare Disorders, Inc
District of Columbia
5 filings from 1 registrant · 2025–2026 · latest filed Jul 20, 2026
Reported on its behalf
$130K
every LD-2 on file
Its own filed spend
$0
lobbying for itself
Fees to outside firms
$130K
across every firm on file
Spend over time
Every filing period on record, as reported. One column per filed period — a period with no column is a period with no filing, not a zero.
Basis · Amendments and terminations supersede the original report for the same registrant, client and period, so a revised quarter is counted once at its latest filed value. Registration-only filings carry no activity money and are excluded from these totals.
Who lobbies for them
Every outside firm that has filed on this client's behalf, by fees reported.
Reading this · LD-2 reports a hired firm's fee and a registrant's reported expenses on separate lines and never both on one filing, so the two lists above are different quantities and are ranked separately rather than against each other. Firm names link to their own record as the firms chapter lands.
What they lobby on
Issue areas declared on the filings, ranked by how many filings name each one.
Health Issues
HCR
5 filings
$130K on those filings
Medicare/Medicaid
MMM
5 filings
$130K on those filings
Pharmacy
PHA
Bills named in the filings
Every bill reference extracted from the filings' activity descriptions.
- H.R. 1 119th CongressAn act to provide for reconciliation pursuant to title II of H. Con. Res. 14.6 filingsthrough 2026
How these are found · Bill references are extracted from the free-text activity description each filing writes, then matched to the Congress in session that filing year. A reference we can't match to a bill on file is still shown, unlinked — we cite what the filing said rather than guess at what it meant. Naming a bill is not a position on it: LD-2 records that a client lobbied on the bill, never which side.
Who did the lobbying
Every lobbyist named on this client's filings.
- James P Keese James P. Keese6 filingsthrough 2026
The filings
Every filing on record. Each row links to its full disclosure.
This record groups every filed spelling of the client's name into one entity, so "MERCK & CO., INC." and "MERCK & CO INC" read as the same company. The grouping is the client's normalized name — organizations that file under genuinely different names appear separately. Handle: national-organization-of-rare-disorders-inc.