Every filing period on record, as reported. One column per filed period — a period with no column is a period with no filing, not a zero.
Basis · Amendments and terminations supersede the original report for the same registrant, client and period, so a revised quarter is counted once at its latest filed value. Registration-only filings carry no activity money and are excluded from these totals.
Who lobbies for them
This organization files only for itself — no outside firm has reported fees for it.
Reported as lobbying expenses
Money reported as spent on lobbying rather than as a fee paid to an outside firm. See the full list.
Diane Edquist DormanNational Organization for Rare Disorders, Inc. (Nord)Covered position: VP Public Policy32 filingsthrough 2015
Paul MelmeyerNational Organization for Rare Disorders, Inc. (Nord)Covered position: Associate Director of Public Policy31 filingsthrough 2019
Heidi RossNational Organization for Rare Disorders, Inc. (Nord)Covered position: Professional Staff Member-House Foreign Affairs Committee; Sr. Policy Advisor-Rep. Eliot L. Engel; Health Policy Advisor-Rep. Elijah E. Cummings; Legislative Assistant- Rep. Charles A. Wilson; Legislative Correspondent-Senator John D. Rockefeller IV21 filingsthrough 2025
The filings
The 20 most recent of 69 filings. Every figure above is built from these records.
Period
Registrant
Type
Reported
Record
2nd Quarter (Apr 1 - June 30) 2026
National Organization for Rare Disorders, Inc. (Nord)
National Organization for Rare Disorders, Inc. (Nord)
This record groups every filed spelling of the client's name into one entity, so "MERCK & CO., INC." and "MERCK & CO INC" read as the same company. The grouping is the client's normalized name — organizations that file under genuinely different names appear separately. Handle: national-organization-for-rare-disorders-inc-nord.
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Reading this · LD-2 reports a hired firm's fee and a registrant's reported expenses on separate lines and never both on one filing, so the two lists above are different quantities and are ranked separately rather than against each other. Firm names link to their own record as the firms chapter lands.
32 filings
$2M on those filings
Budget/Appropriations
BUD
24 filings
$1.7M on those filings
Medical/Disease Research/Clinical Labs
MED
4 filings
Taxation/Internal Revenue Code
TAX
3 filings
$110K on those filings
Copyright/Patent/Trademark
CPT
2 filings
$150K on those filings
Immigration
IMM
1 filing
$60K on those filings
Note · A filing names one to several issue areas and reports a single dollar figure for the period, so the same money appears beside every issue that filing declares. The dollar column is therefore spend on filings that named this issue — it is not a split of the total, and these figures sum above it. Filing counts do not double-count.
113th Congress
Patients' Access to Treatments Act of 2013
10 filingsthrough 2014
S. 204115th CongressTrickett Wendler, Frank Mongiello, Jordan McLinn, and Matthew Bellina Right to Try Act of 20179 filingsthrough 2018
H.R. 2315113th CongressPreserving Access to Orphan Drugs Act of 20139 filingsthrough 2014
H.R. 5115115th CongressRARE Act of 20188 filingsthrough 2018
H.R. 2077115th CongressRestoring the Patient's Voice Act of 20176 filingsthrough 2018
H.R. 3731114th CongressRaD Fund Act6 filingsthrough 2016
H.R. 6114th Congress21st Century Cures Act6 filingsthrough 2016
S. 1421114th CongressOrphan Product Extensions Now Accelerating Cures and Treatments Act of 20156 filingsthrough 2016
S. 1878114th CongressAdvancing Hope Act of 20166 filingsthrough 2016
How these are found · Bill references are extracted from the free-text activity description each filing writes, then matched to the Congress in session that filing year. A reference we can't match to a bill on file is still shown, unlinked — we cite what the filing said rather than guess at what it meant. Naming a bill is not a position on it: LD-2 records that a client lobbied on the bill, never which side.
Mason Oliver Barrett
National Organization for Rare Disorders, Inc. (Nord)
13 filingsthrough 2026
Corinne AlbertsNational Organization for Rare Disorders, Inc. (Nord)13 filingsthrough 2023
Melanie Swick BuzzelliNational Organization for Rare Disorders, Inc. (Nord)13 filingsthrough 2020
Hayley MasonNational Organization for Rare Disorders, Inc. (Nord)11 filingsthrough 2025
Jason BarronNational Organization for Rare Disorders, Inc. (Nord)11 filingsthrough 2013
Allison HerrityNational Organization for Rare Disorders, Inc. (Nord)10 filingsthrough 2026
Peter SaltonstallNational Organization for Rare Disorders, Inc. (Nord)10 filingsthrough 2019
KARIN HOELZER phdNational Organization for Rare Disorders, Inc. (Nord)9 filingsthrough 2024
Rose Avellino GallagherNational Organization for Rare Disorders, Inc. (Nord)9 filingsthrough 2021
Martha L RinkerNational Organization for Rare Disorders, Inc. (Nord)Covered position: Vice President of Public Policy9 filingsthrough 2017
Rachel L. SherNational Organization for Rare Disorders, Inc. (Nord)Covered position: Senior Policy Analyst, Food and Drug Administration; Senior FDA Counsel, Energy and Commerce Committee; FDA Counsel, U.S. Representative Henry Waxman6 filingsthrough 2020
Richard WhiteNational Organization for Rare Disorders, Inc. (Nord)5 filingsthrough 2021
Victoria GemmeNational Organization for Rare Disorders, Inc. (Nord)4 filingsthrough 2025
Michelle AdamsNational Organization for Rare Disorders, Inc. (Nord)Covered position: Sr. Legislative Asst., Senator Kay Hagan; Senior Legislative Asst./Legislative Director, Rep. Louise Slaughter; Legislative Asst., Rep. Michael Capuano; Staff Asst./Legislative Correspondent, Rep. Cynthia McKinney; Staff Asst., Rep. Bob Ethridge4 filingsthrough 2020
Supraja SowmiyanarayanNational Organization for Rare Disorders, Inc. (Nord)2 filingsthrough 2024
Timothy BoydNational Organization for Rare Disorders, Inc. (Nord)2 filingsthrough 2019
Michael BeardNational Organization for Rare Disorders, Inc. (Nord)1 filingthrough 2026
Ruby DehkharghaniNational Organization for Rare Disorders, Inc. (Nord)1 filingthrough 2022
Covered positions · 6 of 21 lobbyists named on these filings disclosed a prior government post. The text is reproduced exactly as filed.
